I’ve been thinking about Thomas lately. He ended up in the ER/Urgent Care the other night for an infection on his leg. He’s fine but did have to have a dose of IV antibiotics. That got me worried a little being that I’m not there nearby but I know he’s in good hands with the nursing staff and residential staff. I have to trust them.
I’ve been thinking of the road we’ve traveled with this son of ours. It hasn’t been an easy one. Many doctors, psych hospitalizations, many med trials and finally residential placement not once but twice. Residential the second time was “easier” because the situation was so dire and my safety was becoming more and more at risk. The school district cooperated with no need to hire a lawyer like the first time. But that didn’t make it a walk in the park. He’s still my son. And my ideal life for him wasn’t for Thomas to live somewhere other than his home, with people other than his family.
My ideal scenario was for Thomas to stay home until he graduated school at age 21 (special Ed students are educated and receive services until they are 21 yrs old). I then envisioned the perfect group home placement close by to where we live. This is not the reality obviously. Our reality is that we are unable to meet Thomas’ needs here at home, he lives an hour away and I pray for group home placement on Staten Island and not an hour away when he turns 21.
In as little as a few years ago I felt like a failure to Thomas. I’ve written about this in the past. I had distinct visions of me one day meeting our Father in heaven and him being disappointed in me, shaking His head saying, “I gave Thomas to you, what have you done??” I no longer feel this way. I know Tommy and I did the best we could with the situation we were given. I know I haven’t failed him as a mother. To quote Maya Angelou “We do the best we could with what we knew, when we knew more we did better”. I’ve had people ask me if that quote was an excuse for doing a bad job. My answer is no and the quote is quite simple and true. It puts my mind at ease as Thomas’ mother because the more I knew about my son and his diagnosis’ the better I did at getting help for him.
My other favorite quote is a bible verse from Romans 5: “3Not only that, but we rejoice in our sufferings, knowing that suffering produces endurance, 4and endurance produces character, and character produces hope, 5and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us.” My suffering has produced endurance, I have character. I certainly have hope and I know I have God’s love.